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- Archive-name: medicine/chronic-fatigue-syndrome/cfs-resources
- Posting-Frequency: monthly
- Last-updated: 1993/9/27
-
- CHRONIC FATIGUE SYNDROME
- Resource file for patients
- CFS-RES.TXT latest version: September 27, 1993
-
- Copyright (c) 1993 by Roger Burns. Permission is granted to
- excerpt this document if the source, and the author (Roger Burns),
- are cited. Permission is also granted to reproduce the entirety of
- this document unaltered. Note that Fido and Fidonet are registered
- marks of Tom Jennings and Fido Software. The listing of public unix
- nodes from Bux Technical Services, Inc. shown in Section 7 below is
- copyrighted by that company, as indicated.
-
-
- CONTENTS
-
- 1. CFS -- Information and Networking
-
- 2. What is Chronic Fatigue Syndrome?
-
- 3. Support Groups
-
- 4. Periodicals, Books, Medical Articles
-
- 5. Sources of Electronic Information
- A: Discussions / Support
- B: BBSs
- C: Network services
- D: Files on Internet
- E: Back issues of CFS-NEWS
-
- 6. BBSs which carry Fidonet's CFS Conference
-
- 7. How to Get Access to the Networks
- A. Internet and Usenet
- B. Commercial Networks
- C. Fidonet
-
-
- This file has been created and is maintained by Roger Burns, a CFS
- patient. The author welcomes suggestions for improving this resource
- file, and can be contacted in the following ways: (postal) Roger
- Burns, 2800 Quebec St. NW #1242, Washington, DC 20008, USA;
- (telephone) 1-202-966-8738; (Internet) CFS-NEWS@LIST.NIH.GOV or
- CFS-NEWS@NIHLIST.BITNET; (FidoNet) Roger.Burns at 1:109/432; or post
- a message on the Fidonet CFS conference.
-
- The latest version of this file is always available on the Internet;
- send the command GET CFS-RES TXT as an e-mail message to the address
- listserv@list.nih.gov . FTP access is available at nodename
- list.nih.gov (128.231.64.10), directory CFS-NEWS, filename
- CFS-RES.TXT. The file has also been uploaded as filename CFS-RES.TXT
- to the following:
- Project ENABLE BBS, tel. 1-304-759-0727, file area 22;
- GEnie network, Page 970, category 18, file area 11;
- CompuServe forum GOODHEALTH, Library 17, (filename CFSRES.TXT).
-
-
- ===================================================================
-
- Section 1: CFS -- INFORMATION AND NETWORKING
-
- There is not enough information in this file to serve as a
- comprehensive resource for CFS patients. For referrals to doctors
- and other helpful information, CFS patients are urged to contact
- one of the national support groups listed under Section 3 below.
- The national groups can also refer you to local support groups, or
- advise you on how to start a local support group. Be sure to
- subscribe to one of the CFS newsletters such as the CFIDS Chronicle,
- the MEssenger, or one of the others published by the national groups
- listed in Section 3 below.
-
- ELECTRONIC NEWSLETTER. Current medical research updates can be
- obtained by subscribing to CFS-NEWS, the Chronic Fatigue Syndrome
- Electronic Newsletter. The newsletter is posted to the CFS "echo"
- (or conference) on Fidonet (see the next item, and Section 6) and is
- also available as USENET newsgroup bit.listserv.cfs.newsletter . It
- is on file on the Project ENABLE BBS, tel. 1-304-759-0727, file area
- 22. For an Internet subscription, follow the procedure in Section
- 5-C below (under Internet) or send an e-mail inquiry to the address
- CFS-NEWS@LIST.NIH.GOV. Back issues are available at the BBS
- mentioned above; also on the Tucson CFS BBS and on Compuserve and
- GEnie (see Section 5-E below).
-
- FIDONET CONFERENCE. It can be very helpful to join the CFS
- Conference and exchange information with the participants on the
- worldwide Fidonet network of personal computers. Access to Fidonet
- is usually free of charge. Currently, the conference is carried by
- 129 BBSs in the USA, Canada, Australia, Britain and the Netherlands.
- See Section 6.
-
- CFS DISCUSSIONS ON NETWORKS. There are active CFS discussions, and
- some files areas, on the CompuServe, Prodigy, GEnie and Internet
- computer networks. If you already have an account on one of these
- networks and wish to find where the CFS discussions & information
- are, see Section 5-C below. If you wish to find out how to get
- access to any of these networks, read Section 7 below.
-
- CFS NEWSWIRE. Support groups exchange news articles and other
- information worthy of re-publication on the CFS Newswire, available
- on Internet and on those services which connect to Internet
- (CompuServe, GEnie, Free-Net and others, and soon Prodigy). For
- further information on how to access Internet, see Section 7-A below.
- Once on Internet, send the command SUB CFS-WIRE <your> <name> to the
- address listserv@sjuvm.stjohns.edu . Newsgroup access is being
- arranged and the Newswire will soon appear as alt.med.cfs.wire. For
- further information, contact the CFS/ME Computer Networking Project
- described below.
-
- ELECTRONIC MAGAZINE. "Catharsis" is a CFS electronic newsmagazine
- which focuses on personal health, intellect and creativity. The
- magazine is posted to the CFS "echo" (or conference) on Fidonet (see
- the next item, and Section 6). For an Internet subscription, follow
- the procedure in Section 5-C below (under Internet) or send an e-mail
- inquiry to the editor (see below). The magazine is available as
- newsgroup alt.med.cfs.zine. Back issues are available on the
- MEDBASE/CFS Tucson BBS at 1-602-790-7420 and on Compuserve and GEnie
- (see Section 5-E below). For inquiries contact editor Molly
- Holzschlag at the Electronic Information Exchange, PO Box 42225,
- Tucson, AZ 85733-2225, USA or at Fidonet Molly.Holzschlag@1:300/23
- or at Internet CATHAR-M@SJUVM.STJOHNS.EDU.
-
- CFS INFORMATION AVAILABLE ON ELECTRONIC FILES. Many helpful
- information files on CFS are available on certain BBSs accessible to
- anyone with a personal computer and a modem, and also on various
- computer networks. See Section 5 below.
-
- NETWORKING PROJECT. The volunteer members of the CFS/ME Computer
- Networking Project assist individuals and support groups in using
- computer networks. They have written articles that may be
- re-published without charge which explain what CFS resources are
- available and where and how they can be found, and they have created
- a CFS Newswire service for news exchange between CFS support
- organizations (see above). For detailed information about Project
- services, send postal mail to The CFS/ME Computer Networking Project,
- PO Box 2397, Washington DC 20013 USA (when corresponding please
- include a stamped, self addressed envelope, or outside of the USA
- include an International Reply Coupon obtainable at your post office)
- or send Internet e-mail to cfs-me@sjuvm.stjohns.edu or Fidonet mail
- to CFS-ME at 1:109/432.
-
-
-
- Section 2: WHAT IS CHRONIC FATIGUE SYNDROME?
-
- Chronic Fatigue Syndrome (CFS) is also known as Chronic Fatigue and
- Immune Dysfunction Syndrome (CFIDS) and outside of the USA is
- usually known as Myalgic Encephalomyelitis (ME). The syndrome is
- known primarily by debilitating fatigue accompanied by other
- flu-like symptoms, which can vary from patient to patient, including
- sore throat, low-grade fever, joint aches and an inability to
- concentrate. The symptoms often come and go in cycles. Medical
- research has associated CFS with low levels of the brain hormone
- cortisol and with viral activity, and on-going research is attempting
- to identify a specific virus or other physical agent as the clear
- cause.
-
- The treatments currently available have rather limited and
- varying effectiveness. The most common recommendations in dealing
- with CFS are to get as much rest as possible and to avoid physical
- and emotional stress. A summary of medical treatments appears in
- chapter 11 of _Running_On_Empty_ by Katrina Berne, Ph.D., and in part
- 2 of _Living_With_M.E._ by Charles Shepherd, M.D. (see Section 4
- below).
-
- CFS sufferers are advised to seek help from a licensed health care
- practitioner who is familiar with the syndrome. They are also
- urged to join one of the various support groups (see next section)
- which advise CFS sufferers, publish newsletters and promote medical
- research of the syndrome.
-
-
-
- Section 3: SUPPORT GROUPS
-
- NOTE: Some local support groups are listed in files found on the
- Project ENABLE BBS (see Section 5-B below) and on Internet (see
- Section 5-D).
-
- === USA ===
-
- CFIDS Association
- P O Box 220398
- Charlotte, NC 28222-0398
- answering machine: 800-442-3437 (44-CFIDS) or 1-704-362-2343
- information line: 900-988-2343 (988-CFID)
- $2.00 1st minute, $1.00 each thereafter
- fax line: 1-704-365-9755
- membership: $25/yr, includes subscr. to "CFIDS Chronicle" magazine
- services: will provide list of local support contacts, also list of
- physicians recommended by local patients; they raise funds for
- medical research, lobby U.S. Congress to influence health policy;
- the Chronicle magazine is excellent; IFMEA Medical Update (quarterly)
- available at $3 per copy.
-
- National CFS Association
- 3521 Broadway / Suite 222
- Kansas City, MO 64111
- telephone: 1-816-931-4777
- Available:
- Quarterly newsletter $15/yr.
- general information packet $1
- patient info. packet $5
- physician's packet $10
- how to be a phone contact $4
- how to form a support group $6
- CFS info. bibliography $3.50
-
- CFIDS Foundation
- 965 Mission St., Suite 425
- San Francisco, CA 94103
- info line: 1-415-882-9986 from 1pm-3pm Pacific Time
- fax: 1-415-882-9758
- publication "CFIDS Treatment News" (about twice yearly); subscr. in
- exchange for any donation (tax deductible).
-
- --- Fibromyalgia ---
-
- Fibromyalgia Network
- 5700 Stockdale Hwy, Suite 100
- Bakersfield, CA 93309
- info line: 1-805-631-1950 from 10am-2pm Pacific Time
- publication: FM Newsletter (quarterly); $15/yr USA, $17/yr Canada
- referrals to local FM groups
-
- -- EI/MCS: environmental illness / multiple chemical sensitivities -
-
- Human Ecology Action League
- P.O. Box 49126
- Atlanta, GA 30359
- tel. 1-404-248-1898
- publishes The Human Ecologist (quarterly), resource and reading
- lists, information on EI/MCS
-
- National Center for Environmental Health Strategies
- 1100 Rural Avenue
- Voorhees, NJ 08043
- tel. 1-609-429-5358
- annual membership is $15/individual, $20/family, $25/prof.,business,
- $10/ltd. income, seniors, youth;
- services: newsletter Delicate Balance; technical assistance;
- referrals for medical, legal, ent'l. & public health specialists;
- books, reports, info packets; info on workplace issues; advocacy;
- Pesticide Exposure Project; help for local support groups
-
- American Acadmey of Environmental Medicine
- P.O. Box 16106
- Denver, CO 80216
- tel. 1-303-622-9755
-
- Chemical Injury Information Network
- P O Box 301
- White Sulphur Springs, MT 59645
- contact: Cynthia Wilson, tel. 1-406-547-2255
- support & advocacy; they publish the monthly "Our Toxic Times",
- available for any donation (no dues or subscription fees)
-
- National Foundation of Chemical Hypersensitivities and Allergies
- PO Box 222
- Ophelia, VA 22530
- tel. 1-804-453-7538
-
- --- Lyme disease ---
-
- National Lyme Disease Foundation
- P.O. Box 462
- Tolland, CT 06084
- tel. 800-886-5963 or 1-203-871-2900
- monthly newsletter $30/yr; many information pamphlets, videos;
- referrals to doctors
-
- === CANADA ===
-
- The Nightingale Research Foundation
- 383 Danforth Avenue
- Ottawa, Ontario K2A 0E1
- telephone: 1-613-728-9643
- fax: 1-613-729-0825
- membership: $35/yr. includes quarterly newsletter
- services: they support a network of local support groups;
- publish a 750 pp. CFS medical textbook edited by Dr. Byron Hyde, MD
-
- M.E. Association
- 246 Queen Street Suite 400
- Ottawa, Ontario K1P 5E4
- telephone: 1-613-563-1565
- fax: 1-613-567-0614
- membership: $35/yr. includes monthly newsletter "The MEssenger";
- list of medical articles regarding CFS/ME provided on request.
-
- National ME/FM Action Network
- 3836 Carling Ave., Hwy 17B
- Nepean, ON K2H 7V2
- membership $20.00/yr, soon to have newsletter
-
- === UK ===
-
- Myalgic Encephalomyelitis Association
- Box 8
- Stanford-le-Hope
- Essex SS17 8EX
- telephone: 44-0375-642466 advice line, 1-4pm: 44-0375-361013
- fax: 44-0375-360256
- membership: #12/yr dues includes subscr. to quarterly newsletter
- "Perpectives"; subscr. to quarterly IFMEA Medical Update is #8/yr
- other services: the advice line shown above gives counseling on
- welfare rights & other issues; refers patients to local support
- groups; provides medical journal articles & other info to physicians
- and others; makes speakers available to give talks; video library.
-
- Action for M.E.
- P.O Box 1302
- Wells, Somerset BA5 2WE
- membership includes subscr. to Interaction journal 3 times/yr.
- dues: UK #12.50; Europe #17.50; overseas #27.50 air, #17.50 surface
- activities: works in partnership with over 200 local M.E. support
- groups, many of whom actively raise public awareness of the
- illness through media and local MPs etc..
- publications:
- - Interaction journal w/o membership is #5 per year (UK);
- available on tape #2 per issue, cheque payable to ME Tapes,
- send to Melanie Kelly, 29 Blandfield Road, London, SW12 8BQ
- - Therapy Information Pack, 9 factsheets on a comprehensive
- range of M.E. therapies (Members #2:50, Non-Members #3:50)
- - Supplementary Factsheets 35p each:
- Information for Doctors, to help your GP
- A Guide for the Non-sufferer, to educate friends,
- relatives and work colleagues
- Information for Employers
- Advice for Young Sufferers, i.e. under 25`s
- other services:
- - Therapy Information Helpline 0959-525341
- - Postal Library; Press Cuttings Library; Medical Library;
- General Lending Library
- - List of Recommended Consultants; member recommended
- consultants that have been found helpful in the past.
- - Free legal Advice
- - Pen Pals Service
- - Introductory video for sale or hire
- - Publicity posters and recruitment leaflets
- - retail discounts on Efamol Marine, probiotics, etc.
-
- Northern Ireland Region M.E. Association
- Bryson House
- 28 Bedford Street
- Belfast BT7 1HP
- tel. 44-0232-439831
-
- Scotland M.E. Association
- 11 Queens Crescent
- Glasgow G4 9AS
- tel. 44-041-332-1651 fax: 44-041-332-0175
-
- === AUSTRALIA ===
-
- ME/CFS Society of New South Wales
- P.O. Box 449
- Crows Nest, NSW 2065
- telephone: 61-2-439-6026 fax: 906-7892
- newsletter (quarterly): AUS$25 /yr.
- $12/yr for students, pensioners, those on benefit programs
- $30/yr for overseas subscribers (airmail)
- services: information; social worker; referrals to local support
- groups throughout NSW
-
- ME/CFS Society of Victoria
- 23 Livingstone Close
- Burwood, Victoria 3125
- newsletter (quarterly)
- telephones:
- admin/social worker: 61-3-888-8991
-
- ME/CFS Society of South Australia
- P.O. Box 383
- GPO, Adelaide, South Australia 5001
- telephone -- counseling & information: 61-8-373-2110
-
- ME Syndrome Society of Queensland
- P.O. Box 12
- Oxenford, Queensland 4210
- tel. 61-75-73-2772
-
- CFS Society of Western Australia
- 92 Powell Street
- Joondanna
- Perth
- Western Australia 6060
- tel. 61-09-483-6667
-
- === NEW ZEALAND ===
-
- A.N.Z.M.E. Society
- P.O. Box 35-429
- Browns Bay
- Auckland 10
- publication "Meeting Place" $35/yr. for overseas airmail subscr.
-
- === IRELAND ===
-
- Irish M.E. Trust
- 18 Upper Fitzwilliam St.
- Dublin 2
- tel. 353-1761413
-
- === NETHERLANDS ===
-
- (Dutch M.E. Foundation)
- M.E. Stichting
- Office: Robert Scottstraat 4
- 1056 AX Amsterdam
- Postal address:
- Postbus 57436
- 1040 BH Amsterdam
- telephone: none
- membership: any donation
- newsletter: "MEdium" (quarterly), 30 guilders/yr.
- other services: send a self-addressed & stamped envelope to receive
- information brochure; IFMEA Medical Update is summarized in MEdium
- newsletter, full text is available at cost of copying & postage --
- contact the office to ask what the exact price is (different for each
- issue)
-
- === BELGIUM ===
-
- AFZ M.E.
- Predikherenstraat 2
- B-3000
- Leuven
-
- === DENMARK ===
-
- Danish ME/CFS Association
- co/ A Midsem
- Maglehoj 86
- DK-3520 Farum
-
- === NORWAY ===
-
- Norges M.E. Forening
- Eikveien 96A
- 1345 Osteras
- telephone & fax: 47-2-249879
- membership: 200 krona/yr includes subscr. to newsletter "ME Nyheter"
- issued 3 or 4 times per year
- other services: offers subscr. to UK Interaction magazine, 45 krona
- per year; provides IFMEA Medical Update (for now, no charge to
- members); support group meetings in Oslo
-
- === GERMANY ===
-
- Selbsthilfegruppe CFS-Syndrom - Immundysfunktion
- c/o Birke Steinitz
- An St. Swidbert 52
- D-40489 Duesseldorf
- telephone: 49-211-404376
-
- === ITALY ===
-
- C.F.S. Associazione Italia
- Segreteria: Via Moimacco 20
- 33100
- Udine
-
- === HONG KONG ===
-
- Hong Kong ME Information
- 60B Conduit Road, 3rd floor
-
- === PAPUA, NEW GUINEA ===
-
- Papua, New Guinea Myalgic Encephalomyelitis Support
- Box 44
- Ukarumpa, Via Lac
-
- === REPUBLIC OF SOUTH AFRICA ===
-
- ME Awareness Group
- 66 Third Street
- Lower Houghton, 2198
-
- M.E. Association of South Africa
- PO Box 461
- Hillcrest 3650
-
-
-
- Section 4: PERIODICALS, BOOKS, MEDICAL ARTICLES
-
- === PERIODICALS ===
-
- > IFMEA Medical Update (quarterly) -- contact one of the following
- national groups listed in Section 3 above: CFIDS Assoc. (USA), M.E.
- Assoc. (UK), M.E. Stichting (Neths.), Norges M.E. Forening (Norway)
- >CFIDS Chronicle -- see Section 3 above, USA "CFIDS Association"
- >MEssenger (monthly) -- see Section 3 above, Canada "M.E.
- Association"
- >Interaction (3/yr) -- see Section 3 above, ME Action Campaign (UK)
- or Norges ME Forening (Norway)
- >Meeting Place -- see Section 3 above, New Zealand "ANZME"
- >CFIDS Treatment News (twice yearly) -- see Section 3 above, USA
- "CFIDS Foundation"
- >FM Newsletter (quarterly) -- see Section 3 above, USA "Fibromyalgia
- Network"
- >Heart of America Newsletter (quarterly) -- see Section 3 above,
- USA "National CFS Association"
- >The Update (quarterly) -- from the Mass. CFIDS Assoc., 808 Main
- St., Waltham, MA 02154, USA. $20/yr.
- >CFS DysPatch Newsletter (about 6 per year) -- from CFS Information
- & Support Group of Charleston, Inc., 997 Johnnie Dodds Blvd. #811,
- Mt. Pleasant, SC 29464. Subscription: USA $15/yr., Canada US$17,
- Foreign $24, make check payable to CFS Inc.
-
- === BOOKS ===
-
- "Living With M.E.: the Chronic/Post-Viral Fatigue Syndrome", new
- edition for 1992, by Dr. Charles Shepherd, MD. 380 pp. North
- America: send $13.99 to Butterworth Canada Lt'd., 75 Clegg Road,
- Markham, Ontario L6G 1A1, CANADA. Canadian customers add 7% GST.
- Add $4 if not pre-paid. Accept VISA & M/C. Fax # 1-416-479-2826.
- Britain: send #8.00 to Reed Consumer Books, Dept. SP, First Floor,
- FREEPOST, Michelin House, 81 Fulham Road, London SW3 6YZ. Accept
- Access/American Express/Barleycard/ Diners Club/Visa. Australia: $12
- plus $4 postage, send to ME/CFS Society Victoria Inc., 23 Livingstone
- Close, Burwood, Victoria, 3125 Australia.
-
- "Chronic Fatigue Syndrome: A Pamphlet for Physicians", publication #
- 92-484, by the staff of NIH; May 1992; 15 pages; free of charge. For
- copies, contact Office of Communications, N.I.A.I.D., Building 31
- Room 7A32, 9000 Rockville Pike, Bethesda, MD 20892, tel. 1-202-496-
- 5717. [Note: the text of this pamphlet is available as an electronic
- file, on Internet as filename CFS NIH-DOC and on various BBSs as
- CFS-NIH.DOC; see Section 5, subsections B and D, below.]
-
- "Running On Empty: Chronic Fatigue Immune Dysfunction Syndrome"
- by Katrina Berne, Ph.D.; 1992; 320 pages; softcover $13.95, hardcover
- $21.95, add shipping cost: $2 USA, $3 Canada; make check payable to
- Hunter House Inc., 2200 Central Ave., Alameda, CA 94501-4451, USA; or
- use VISA or M/C; tel. 1-510-865-5282, fax 1-510-865-4295.
-
- "The Clinical and Scientific Basis of Myalgic Encephalomyelitis /
- Chronic Fatigue Syndrome" edited by Dr. Byron Hyde MD, 75 articles by
- 80 researchers; 1992; 750 pp.; $140.00 Canadian or US, which includes
- postage and handling, Canadian orders are not subject to GST; $85
- for patients, or contact Foundation for commission policy; VISA,
- MasterCard or American Express, include signature, card number and
- expiration date; order via telephone 1-613-728-9643 or fax
- 1-613-729-0825. Make checks or bank drafts payable to Nightingale
- Research Foundation, 383 Danforth Avenue, Ottawa, Ontario K2A 0E1,
- CANADA.
-
- "Chronic Fatigue Syndromes: The Limbic Hypothesis" by Dr. Jay
- Goldstein, M.D. 259 pages. 27 color plates. Softbound $49.95 ISBN
- 1-56024-904-8; Hardbound $89.95 ISBN 1-56024-433-X. Add shipping &
- handling charges: USA, $2.75 by mail ($3.75 by UPS); Outside USA,
- surface $4.50, air $6.00. Checks and money orders should be in U.S.
- funds. New York State residents should identify their county and add
- appropriate sales tax after shipping and handling. In Canada, add 7%
- before shipping for Canadian GST. Accept VISA, M/C, AMEX: include
- account #, expiration date, signature (for M/C also include bank #);
- if paying from outside the USA be sure to allow for the current
- exchange rate. US libraries and institutions may be billed later;
- send PO# and signature. Orders may be placed by calling tel. (USA &
- Canada) 1-800-342-9678 or (international) 1-607-722-5857 from 9am-5pm
- EST. Send mail orders to The Haworth Medical Press, 10 Alice Street,
- Binghamton, NY 13904-1580, USA.
-
- === MEDICAL ARTICLES ===
-
- Klimas N; Salvato F; Morgan R; Fletcher M; "Immunologic abnormalities
- in chronic fatigue syndrome". J of Clinical Microbiology 28:1403-1410
- (June 90) [Study showing that NK cells (a kind of immune cell)
- malfunction in CFS patients; other abnormalities]
-
- Buchwald D; Komaroff A; Cheney P; et al.; "A chronic illness
- characterized by fatigue, neurologic and immunologic disorders and
- HHV-6 infection". Ann Int Med 116:103-112 (Feb 1992) [Study showing
- many CFS patients have HHV-6 infections]
-
- Demitrack M; Dale J; Straus S; et al.; "Evidence for Impaired
- Activation of the Hypothalamic-Pituitary-Adrenal Axis in Patients
- with Chronic Fatigue Syndrome". J of Clinical Endocrinology &
- Metabolism 73:1224-34 (Dec 1991) [shows chemical abnormalities in
- the brains of CFS patients]
-
- Straus S; Strober W; Dale J; Fritz S; Gould B; "Lymphocyte Phenotype
- and Function in the Chronic Fatigue Syndrome". J of Clinical
- Immunology 13:30-40 (Jan 93) [Study showing T4 cell (a type of
- immune cell) abnormalities in CFS patients]
-
- Lusso P; Malnati M; Garzino-Demo; Crowley; Long; Gallo; "Infection of
- natural killer cells by human herpesvirus 6". Nature 362:458-462
- (April 1 1993) [HHV-6 -- previously found in CFS patients -- now
- shown to kill NK cells (a type of immune cell) -- a small but
- important advance in research]
-
-
-
- Section 5: SOURCES OF ELECTRONIC INFORMATION:
-
- === A: DISCUSSIONS / SUPPORT ===
-
- For a description of electronic discussions on Fidonet and other
- computer networks, see Section 1 above.
-
- === B: BBSs ===
-
- PROJECT ENABLE BBS : 1-304-759-0727
- Cross Lanes, West Virginia USA Sysop: Tom Freeman
-
- MEDBASE / TUCSON CFS BBS : 1-602-790-7420
- Tucson, Arizona USA sysop: Molly Holzschlag
-
- USA CFIDS/CFS BBS : 1-207-623-8486
- Augusta, Maine USA Sysop: John Kossowan
-
- WHOLENOTE BBS : 1-704-251-9863
- Asheville, North Carolina USA Sysop: Will McGruffin
- > over 100 files of CFS information
-
- Lifeline BBS : 1-904-276-4724
- Jacksonville, Florida USA Sysop: Gail Hitson
-
- Health Support BBS : 1-904-727-7794
- Jacksonville, Florida USA Sysop: Linda Solomon
-
- MED-INFO BBS : 1-904-246-1481
- Jacksonville, Florida USA
-
- SOUTH OF THE RIVER : 1-913-642-7907
- Kansas City, Kansas USA
-
- NATIONAL CAPITAL FREENET : 1-613-780-3733
- Ottawa, Ontario CANADA (enter GO CFSEIR)
-
- WHOLEBIT COMPUTER NEWS : 1-613-521-3690
- Ottawa, Ontario CANADA Sysop: Sandy Shaw
-
- BLACK BAG BBS : 1-302-994-3772
- Newport, Delaware USA Sysop: Ed Delgrosso, M.D.
-
- WELLSPRING BBS : 1-714-856-7996
- Irvine, California USA Sysop: Steve Clancy
- > a service of the Univ. of California/Irvine Biomedical Library
-
- SHAKING HANDS : 44-252-626233 Fleet, BRITAIN
-
- MEGAHERTZ (Midn-6am): 44-81-595-1921
- London, BRITAIN Sysop: Lloyd Hopkins
-
- DUTCH HEALTH BBS : 31-55-337951 Apeldoorn, NETHERLANDS
-
- SPACIAL EXPANDER BBS : 61-2-6733559 Sydney, AUSTRALIA
-
- === C: NETWORK SERVICES ===
-
- This subsection covers "what CFS resources are on the networks, and
- where to find them once you're on the network". To find out how to
- get on the various networks, see Sections 6 and 7 below.
-
- FIDONET CFS CONFERENCE, also known as the Fidonet CFS "echo", is a
- very active CFS discussion group. It's available on BBSs world-wide
- that usually charge no user fees. (The conference is described
- further in Section 1 above). A list of BBSs that currently carry the
- conference is in Section 6 below, and if none are nearby to you then
- there is advice on how to get a local Fidonet BBS to carry the
- conference, or "echo", in Section 7 below.
-
- PRODIGY computer service has a very active CFS discussion group.
- Prodigy is available in the USA only. To get to the CFS section,
- [JUMP] Medical Support and then choose the topic devoted to Chronic
- Fatigue Syndrome. Prodigy plans to add Internet e-mail in the autumn
- of 1993. For sign-up and cost information, see Section 7 below.
-
- GENIE computer service has an active CFS discussion & files area.
- Subscribers may go to page 970 and choose Category 18. Files are in
- area #11. Internet e-mail is available; for beginner's help with
- *sending* Internet mail, enter the command M 207. However, to
- regularly send and read Internet mail, use the usual GEnie mail area
- at page 200. To send, simply Add "@INET#" to the end of any Internet
- address in order to send to that address; e.g. to send mail to the
- CFS-NEWS editor whose Internet address is cfs-news@list.nih.gov you
- should send your GE Internet mail to cfs-news@list.nih.gov@inet# .
- For sign-up and cost information, see Section 7 below.
-
- INTERNET has the CFS-L conference, the CFS-NEWS electronic
- newsletter, the CFS Newswire service, the Catharsis Newsmagazine, and
- information files available on 2 different Listservs (see the
- following subsection). There are also discussion groups on general
- immune system dysfunction; fibromyalgia, holistic lifestyle,
- vegetarianism, and other topics.
-
- - To join CFS-L or CFS-NEWS, Internet users can send a subscription
- command by e-mail in the form of SUB <listname> <your_first_name>
- <your_last_name> to the automated administrator at
- LISTSERV@LIST.NIH.GOV ; e.g., send the command SUB CFS-NEWS John Doze
- to that address. If there is any difficulty, send an inquiry by
- e-mail to the moderator at address CFS-NEWS@LIST.NIH.GOV .
-
- - the CFS Newswire (listname CFS-WIRE) and Catharsis magazine
- (listname CATHAR-M) are available at a different Listserv address.
- To subscribe the, send the command SUB <listname> <your_first_name>
- <your_last_name> to the address LISTSERV@SJUVM.STJOHNS.EDU . If
- there is any difficulty, send an inquiry to the Newswire operators at
- CFS-WIRE-REQUEST@SJUVM.STJOHNS.EDU, or to the Catharsis editor at
- address CATHAR-M@SJUVM.STJOHNS.EDU .
-
- Internet also has the FIBROM-L and "immune" discussion groups.
- FIBROM-L is a Listserv discussion group devoted to fibromyalgia
- issues. To join, type the command SUB FIBROM-L <your> <name>, where
- your name replaces <your> <name>, and send it to
- LISTSERV@UIUCVMD.BITNET or to LISTSERV@VMD.CSO.UIUC.EDU . To join
- "immune", send a request to the list-owner at address
- immune-request@weber.ucsd.edu . For information on getting access to
- Internet, see Section 7 below. For information about other
- discussion groups, send the command GET CFS NET-HELP to the address
- listserv@list.nih.gov .
-
- COMPUSERVE computer service has begun a CFS discussion in its Health
- & Fitness Forum. Enter GO GOODHEALTH, find message section 17
- (Self-Help/Support) and see messages with "CFS" in the subject
- header. Be sure that messages which you post include "CFS" in the
- subject header. There are information files in GOODHEALTH's Library
- 17 as well; using the Library section's Browse command, do a keyword
- search on "CFS". Compuserve offers Internet e-mail access: enter GO
- MAIL and when entering an address, insert >INTERNET: before the
- Internet address. For sign-up and cost information, see Section 7
- below.
-
- USENET "newsgroups" are available on the UUCP network and are carried
- by a number of BBSs (see NIXPUB and PDIAL info in Section 7 below).
- Both CFS-NEWS and the CFS-L discussion group are seeking approval to
- set up gateways to sci.med newsgroups (perhaps by late 1993). For
- now, CFS-NEWS is gatewayed to bit.listserv.cfs.newsletter and the
- CFS-L discussion group is gatewayed to alt.med.cfs.
-
- FREE-NETS are non-profit systems in various cities (all inter-
- connected) that offer free access to Internet e-mail and other
- services (see Section 7 below). From any of the Free-Nets you can
- access the CFS section on the National Capital Free-Net in Ottawa (or
- telnet to 134.117.1.25). Once in that system, enter the command GO
- CFSEIR to get to that section.
-
- MCI-MAIL offers Internet electronic mail and all in-coming messages
- are free, thus this service is excellent for receiving CFS-NEWS,
- CATHAR-M and monitoring the CFS-L discussion group. However,
- out-going messages are expensive. They also offer faxes and other
- communication services. For sign-up and cost information, see Section
- 7 below.
-
- === D: FILES ON INTERNET ===
-
- A general description of, and means of access to, the Internet
- appears in Section 7 below. Information files about CFS are
- available for retrieval by e-mail from the Internet. The Albany
- Listserv is at address LISTSERV@ALBNYDH2.BITNET or alternatively
- LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU. To get a list of available
- files, send the message GET CFS-D FILELIST to the above address. To
- get any specific file, send the message GET <filename1> <filename2>
- (each file has a two-part name). For example, to retrieve the latest
- version of THIS file (which is named CFS-RES TXT), send the message
- GET CFS-RES TXT . To automatically receive future notices about
- updates to the CFS filelist, create the message SUB CFS-D <your>
- <name> where your name replaces <your> <name>, and send it to the
- LISTSERV address shown above.
-
- A new base of CFS information files is being developed at the SJUVM
- Listserv. To get a list of available files, send the message GET
- CFS-FILE FILELIST to the address LISTSERV@SJUVM.STJOHNS.EDU or to
- LISTSERV@SJUVM.BITNET . To get any specific file, send the message
- GET <filename1> <filename2> (each file has a two-part name) to the
- Listserv address above.
-
- === E: BACK ISSUES OF CFS-NEWS ===
-
- CFS-NEWS back issues are stored on several systems.
-
- - via Internet e-mail, send the command GET CFS-NEWS ### (where ###
- represents a particular issue number, e.g., for issue #21, ### would
- be 021) as e-mail to LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU
-
- - via Internet anonymous ftp, connect to list.nih.gov
- (128.231.64.10), directory CFS-NEWS, monthly logs in the form of
- filename cfs-news.logYYMM, where YYMM represents the year and month;
- e.g. for 1992, August the filename would be cfs-news.log9208; to see
- what is contained in each monthly log, get filename cfs-news.index;
-
- - on the Project ENABLE BBS in Cross Lanes, West Virginia USA at
- tel. 1-304-759-0727 in file area 22;
-
- - on the Fidonet CFS echo or USENET newsgroup
- bit.listserv.cfs.newsletter, check previous messages.
-
- - on Compuserve in the GOODHEALTH forum, section 17, filenames in
- the form of CFSNEW.### (where ### represents a particular issue
- number, e.g., for issue #21, ### would be 021) . Also on GEnie on
- page 970, Category 18, file area 11, filenames CFS-NEWS.###. And on
- the MEDBASE / Tucson CFS BBS at tel. 1-602-790-7420, in the
- newsletter section.
-
-
-
- Section 6: BBSs WHICH CARRY FIDONET'S CFS CONFERENCE
-
- Fidonet is a volunteer network of personal computer "bulletin board
- systems" (BBSs) which can be accessed by anyone with a personal
- computer and a modem. The CFS Conference on Fidonet is sponsored by
- the West Virginia Research and Training Center in Cross Lanes, West
- Virginia USA. The conference can be reached at any of the 128 BBSs
- listed below (although additional BBSs are joining every week). Each
- day, participants exchange and discuss experiences about treatments
- and other issues. If none of these BBSs are particularly near to
- you, see subsection 7(B) below about further access to Fidonet BBSs.
- The following listing is compiled and maintained by Mr. Sandy Shaw.
-
- CFS CONFERENCE BBS LIST
- as of July 29, 1993
-
- === USA ===
-
- MetaBoard Birmingham AL 1-205-254-3344
- Ken's BBS Montgomery AL 1-205-244-0296
- The Whole-Wheat Twinkie Little Rock AR 1-501-227-9600
- The U.S.A. BBs N Little Rock AR 1-501-753-8575
- Golden Valley PonyRom Kingman AZ 1-602-757-0385
- Comm-Post Tucson AZ 1-602-571-9063
- Prologue Tucson AZ 1-602-741-7851
- Clovis-Net Clovis CA 1-209-292-3530
- The Beemer Board Manteca CA 1-209-823-0854
- One World Los Angeles CA 1-310-372-0987
- Body Dharma Online Berkeley CA 1-510-836-4717
- WPGS Adelanto CA 1-619-246-5166
- Mushin BBS San Diego CA 1-619-535-9580
- Shenk's Express La Mesa CA 1-619-697-8873
- Serenity in Sonoma Santa Rosa CA 1-707-576-0397
- CA Self-Help Library Anaheim CA 1-714-952-2110
- Central Computer Banks Tujunga CA 1-818-352-2993
- Mysteria Tujunga CA 1-818-353-8891
- ST-Keep Support Citrus Height CA 1-916-729-2968
- The Crypts of Chaos Roseville CA 1-916-781-2092
- Denver Goodwill Westminster CO 1-303-650-7732
- Cuerna Verde BBS/2 Pueblo CO 1-719-545-8572
- The Handicap News Shelton CT 1-203-926-6168
- The Dosadi Experiment Wethersfield CT 1-203-257-9906
- EmeroGronican II Wethersfield CT 1-203-721-0706
- Black Bag BBS Newark DE 1-302-994-3772
- The 'us' Project Wilmington DE 1-302-529-1650
- SpaceCon BBS Audubon FL 1-407-459-0969
- The Above Board Sarasota FL 1-813-377-1470
- GammaTown BBS Sunrise FL 1-305-572-7060
- Health Support Jacksonville FL 1-904-727-7794
- Lifeline Jacksonville FL 1-904-276-4724
- MedInfo Jacksonville FL 1-904-246-1481
- The Fire Escape St. Augustine FL 1-904-823-0947
- Southern Crescent Forest Park GA 1-404-363-0194
- The Public's Domain Martinez GA 1-706-860-5070
- Karma *VS Dogma Des Moines IA 1-515-288-7793
- Silver Slipper BBS Pekin IL 1-309-346-6829
- BearWiz Peoria IL 1-309-697-1011
- I Can! BBS Chicago IL 1-312-736-7434
- The Llama Kingdom Rockford IL 1-815-654-7956
- Special Needs BBS Whiting IN 1-219-659-0112
- South of the River Kansas City KS 1-913-642-7907
- N.O.P.C. Club BBS New Orleans LA 1-504-486-7249
- Middlesex News BBS Framingham MA 1-508-872-8461
- StarBase Boston MA 1-617-739-9246
- VIBUG Boston MA 1-617-767-2909
- Real Times Boston MA 1-617-783-8820
- The Twilight Clone Rockville MD 1-301-946-3070
- Light Source Silver Spring MD 1-301-439-7437
- NatureNet BBS Silver Spring MD 1-301-585-5680
- The Idea Link Silver Spring MD 1-301-949-5764
- Message Express Marysville MI 1-313-364-4162
- Boat Town USA Mt. Clemens MI 1-313-468-0912
- New Life BBS Sterling Heights MI 1-313-795-5829
- The Lyme Light Warren MI 1-313-774-5038
- Twin Star Waterford MI 1-313-623-6314
- Ancient Heart Saginaw MI 1-517-752-3203
- DRAGnet Andover MN 1-612-753-1943
- Doc in the Box BBS Jefferson City MO 1-314-893-6099
- On-Line Radio Wave Kansas City MO 1-816-561-3650
- Electronic Dreams BBS Jackson MS 1-601-372-6998
- The Orphanage Charlotte NC 1-704-873-2058
- Deredain's Realm Fair Lawn NJ 1-201-796-2752
- SelfHelp BBS Elizabeth NJ 1-908-289-3981
- The Electronic Trib Albuquerque NM 1-505-823-7700
- CIC/S.I.G.C.A.P.H Churchville NY 1-716-293-2692
- Med TechNet Buffalo NY 1-716-688-1552
- IN*TOUCH Rochester NY 1-716-594-1222
- Acorn I Marlboro NY 1-914-236-3265
- Purple Rose of Cairo Poughkeepsie NY 1-914-473-1697
- Nerd's Nook II Rocky River OH 1-216-356-1772
- Olman BBS Beavercreek OH 1-513-427-9473
- Michele's BBS Miamisburg OH 1-513-435-1163
- The Book Club BBS Columbus OH 1-614-268-8050
- Bitter Butter Better Tigard OR 1-503-620-0307
- Oregon Desert Madras OR 1-503-475-3056
- Modern BBS / Compu Mail Hatboro PA 1-215-638-2334
- Chronicles of Narnia Philadelphia PA 1-215-464-9068
- The Pythonian Philadelphia PA 1-215-676-3618
- ECBear Philadelphia PA 1-215-755-1917
- US Telematics Yardley PA 1-215-493-5242
- Sounding Board Pittsburgh PA 1-412-621-4604
- The Programmers Pit York PA 1-717-845-2725
- Matric Limited Franklin PA 1-814-437-5647
- The Equalizer BBS Dalzell SC 1-803-469-2018
- The Soul Connection San Antonio TX 1-210-674-1242
- FIAWOL/MS-Connection Dallas TX 1-214-790-6472
- National Amputee Connection Dallas TX 1-214-238-0928
- Enterprise BBS Austin TX 1-512-453-5079
- A Little Corner in Time Houston TX 1-713-451-6066
- MacEndeavour Houston TX 1-713-640-1298
- The Recovery Corner Burleson TX 1-817-447-1619
- Sky's The Limit Adanet El Paso TX 1-915-594-7806
- HandiNet BBS Virginia Beach VA 1-804-496-3320
- Le Maison De Metal Lacey WA 1-206-493-0798
- Darkstar System Longview WA 1-206-578-1157
- Rob's Wreck Room Longview WA 1-206-578-1948
- WCIS#2 Seattle WA 1-206-767-7681
- Project Enable Cross Lanes WV 1-304-759-0727
-
- === CANADA ===
-
- Generations Calgary AB 1-403-251-5540
- The Messhall Calgary AB 1-403-286-7545
- Alberta On-Line RBBS Edmonton AB 1-403-466-7613
- Owl & PussyCat Abbotsford BC 1-604-436-3271
- Metamorphosis N. Vancouver BC 1-604-986-8791
- Second Chance Nanaimo BC 1-604-753-9137
- Square Hole Nanaimo BC 1-604-756-3177
- T.R.A.C.E. Richmond BC 1-604-272-5888
- The BandMaster Vancouver BC 1-604-266-7754
- Acropolis HST Grimsb ON 1-416-945-6131
- The House of Comments Pickering ON 1-416-831-6102
- The Artsy-Fartsy BBS Toronto ON 1-416-465-7436
- Leftover Hippies Toronto ON 1-416-466-8931
- Can-Do Systems group Toronto ON 1-416-604-1221
- AbleLINK Toronto ON 1-416-650-5411
- Canada Remote Systems Toronto ON 1-416-798-4713
- Crawlin' Kingsnake Kitchener ON 1-519-744-6266
- Chans Land BBS! Stratford ON 1-519-273-5607
- Home Base St. Thomas ON 1-519-633-7253
- Disability Access BBS Ottawa ON 1-613-837-5473
- Echo Valley Ottawa ON 1-613-749-4550
- Ottawa-Orleans P.S. UG Ottawa ON 1-613-747-7665
- Parity Error EMCS Ottawa ON 1-613-737-0966
- The Procrastinators Ottawa ON 1-613-669-0617
- Wholebit Computer News Ottawa ON 1-613-521-3690
- Viking's Cove Trenton ON 1-613-394-5919
-
- === AUSTRALIA ===
-
- Heaven's Door St. Ives NSW 61-2-440-8364
- The Runway Stanmore NSW 61-2-569-5130
- Big Tedd's Fitzroy VIC 61-3-417-2440
- Imail & FileMgr Support Coldstream VIC 61-3-739-0028
- The Homeless BBS Frankston VIC 61-3-783-1275
- Atropos Wantirna South VIC 61-3-887-1485
- Perth Omen Perth WA 61-9-244-2111
-
- === BRITAIN ===
-
- Shaking Hands Fleet UK 44-252-626233
- MEgahertz (Midn-6am) London UK 44-81-595-1921
-
- === NETHERLANDS ===
-
- Dutch Health BBS Apeldoorn NL 31-55-337951
-
- The CFS echo is on Fidonet's North American backbone. To pickup the
- CFS echo feed directly, sysops can dial in North America to
- 1-304-759-0727, in Europe to 44-81-595-1921 (Midn-6am GMT), and in
- Australia to 61-3-417-2440. Please post corrections and updates of
- the above information to the CFS echo to the attention of Sandy Shaw,
- or send e-mail to Mr. Shaw at Fidonet 1:163/221, or Internet
- aa328@freenet.carleton.ca .
-
-
-
- Section 7: HOW TO GET ACCESS TO THE NETWORKS
-
- This section describes how to get on Internet, Usenet, the commercial
- networks, and how to find a BBS near to you that will carry the CFS
- conference if none of those listed in Section 6 above are near you.
- To see descriptions of what CFS resources are available on these
- various networks, see Section 1 and subsection 5-D above.
-
- A. INTERNET AND USENET
-
- "The Internet" is the name for the rapid communications network which
- uses electronic mail and other services to link most mainframe
- computers around the world. On the Internet you can get quick access
- to the CFS-NEWS electronic newsletter, and you can participate in the
- CFS-L worldwide discussion group and other groups, all available
- through Internet e-mail.
-
- Access to Internet can be gained through:
-
- - various "Free-Nets", listed below;
- - free or low-cost public unix nodes, listed below;
- - most of the commercial services described in subsection 5-D
- above, (and whose costs are described in subsection B below);
-
- FREE / LOW-COST INTERNET ACCESS.
-
- FREENET. The various Free-Nets allow Internet access at little or no
- cost. Current Free-Nets (FNs) now operating are as follows:
-
- Name Location Dial-in login info
- ------------- ------------ -------------- -----------
- Denver FN Denver CO 1-303-270-4865 login: guest
- CapAccess Washington DC 1-202-785-1523 login: visitor
- password: guest
- Tallahassee FN Tallahassee FL 1-904-488-5056 login: visitor
- Heartland FN Peoria IL 1-309-674-1100 login: bbguest
- COIN Columbia MO 1-314-884-7000 login: guest
- Big Sky Telegraph Dillon MT 1-406-683-7680 login: bbs
- Buffalo FN Buffalo NY 1-716-645-6128 login: freeport
- Cleveland FN Cleveland OH 1-216-368-3888 login: Select #2
- at first menu
- Lorain County FN Elyria OH 1-216-366-9721 login: guest
- Youngstown FN Youngstown OH 1-216-742-3072 login: visitor
- TriState Online Cincinnati OH 1-513-579-1990 login sequence:
- cbos, visitor, 9999, <return>
- Medina County FN Medina OH 1-216-723-6732
-
- Victoria FN Victoria BC 1-604-595-2300 login: guest
- National Capital FN Ottawa ON 1-613-780-3733
-
- Citynet Wellington NZ write to Computer Services,
- Wellington City Council
- P.O. Box 2199, Wellington, NZ
-
- For more information on Free-nets contact NPTN (National Public
- Telecomputing Network), P.O. Box 1987, Cleveland, Ohio 44106 USA,
- tel. 1-216-247-5800, FAX: 216-247-3328, Internet info@nptn.org,
- anonymous ftp to nptn.org (192.190.49.8) /pub/info.nptn/ .
-
- ====================================================================
- PUBLIC UNIX NODES (July 5, 1993). The following information is
- copyrighted. Below is a list of Public Unix nodes, most of which
- offer free or low-cost use of Internet e-mail, and many offer access
- to newsgroups. The following data is used at your own risk and cost.
-
- Name Location Dial-in login info
- ------- ------------------ -------------- -----------
- coyote Tucson AZ 1-602-293-3726
- szebra Sunnyvale CA 1-408-739-1520 login: bbs
- gorn Santa Cruz CA 1-408-458-2289 login: gorn
- uuwest Sunnyvale CA 1-408-245-7726 login: new
- woodowl Livermore CA 1-510-294-8591
- netlink San Diego CA 1-619-453-1115 login: bbs
- cyber Encinitas CA 1-619-634-1376 login: guest
- nyx Denver CO 1-303-871-3324 login: new
- admiral Greenwich CT 1-203-661-1279
- vicstoy Orlando FL 1-407-299-3661 login: bbs
- passwd: (none)
- amaranth Pensacola FL 1-904-456-2003
- oaknet Oak Lawn IL 1-708-425-8739
- lunatix Lexington KY 1-606-233-2051
- genesis North Reading MA 1-508-664-0149
- anubis Jackson MI 1-517-789-5175
- pnet51 Minneapolis MN 1-612-473-2295 login: pnet id: new
- tutor Lebanon NH 1-603-448-5722
- kilowatt Deer Park NY 1-516-586-4743
- tnl Troy NY 1-518-237-2163 login: new
- exuco1 Buffalo NY 1-716-634-6552
- bluemoon Reynoldsburg OH 1-614-868-9980
- techbook Beaverton OR 1-503-220-0636
- m2xenix Portland OR 1-503-297-3211
- medsys Kingsport TN 1-615-288-3957 login: bbs pass: bbs
- sdf Dallas TX 1-214-436-3281
- sugar Houston TX 1-713-684-5900
- nuchat Houston TX 1-713-668-7176
- bitsko Salt Lake City UT 1-801-566-6283
- wyvern Norfolk VA 1-804-627-1828
- tnc Fairfax Station VA 1-703-803-0391
- solaria Milwaukee WI 1-414-321-9287 login: help
- madnix Madison WI 1-608-273-2657 login: bbs
-
- ichlibix Blainville QU 1-514-435-8896
-
- infocom Berkshire UK 44-734-34-00-55 login: new
- scuzzy Berlin DE 49-30-694-61-82 login: guest
- isys-hh Hamburg DE 49-40-494867
- odbffm Frankfurt/Main DE 49-69-308265
- nervous Rimini (Fo) IT 39-541-27135
- ixgch Kaiseraugst CH 41-61-8115492
- cavebbs Wellington NZ 64-4-564-2314
-
- The information above is a selection of the complete NIXPUB listing
- and is shown here by special arrangement with Bux Technical Services.
- (C) Copyright 1993 by Bux Technical Services. This publication is
- released for unlimited redistribution over any electronic media, and
- is released for reproduction in the publications of any not-for-
- profit patient group publications providing it remains in its
- original form. Otherwise publishing, removing this copyright notice,
- or in any way revising this document's contents is forbidden without
- written consent from the owner (contact Bux Technical Services, PO
- Box 110, Doylestown, PA 18901 USA; internet phil@bts.com; tel.
- 1-215-348-9721, Fax 1-215-348-2567).
- ====================================================================
-
- If you want the complete NIXPUB file, which shows many more nodes
- than listed above, note that it comes in 2 versions: long, and short
- (1-line descriptions). They are available from the UNIX DEPOT BBS (7
- bits, even parity) at 1-215-348-9727; login as nuucp, enter the BBS
- service, filenames /usr/spool/uucppublic/nixpub and *.short . On the
- Internet, send mail with the message text containing "get PUB
- nixpub.long" or "get PUB nixpub.short" to mail-server@bts.com.
-
- Another source, the PDIAL file, contains a list of public unix nodes
- which offer a wide variety of services for fees that are moderate or
- expensive. It is available at the Project ENABLE BBS at telephone
- 1-304-759-0727 in file area 22 as filename PDIAL.TXT. On Internet,
- send email with the subject "Send PDIAL" to the address
- info-deli-server@netcom.com .
-
- B. COMMERCIAL NETWORKS
-
- The CFS resources that are available on the following services were
- described in subsection 5-D above. What appears below is information
- on costs and how to sign up.
-
- GENIE. To join, call 1-800-638-9636 in the USA or Canada. GENIE
- service in the USA is $8.95/month. The hourly rate is $3/off-peak,
- $9.50/peak (i.e., Mon-Fri 8am-6pm). In Canada, GEnie is $10.95 per
- month. The hourly rate is $4/peak, $12/off-peak. Four hours of free
- credit are allowed to all customers each month. Internet e-mail is
- billed as part of the overall service.
-
- PRODIGY is available in the USA only. To join call 1-800-776-3449.
- There are 3 pricing plans and the cost for each needs local tax
- added. The "value plan" is $14.95 per month and includes all use of
- "core" services (which do *not* include the CFS/Medical Support area)
- for no extra hourly usage fee; "Plus" services are charged by the
- standard rates (see below). The "alternate plan 1" is $7.95/month
- which includes 2 free hours of core and/or Plus services; extra hours
- beyond the 2 free hours are billed. The "alternate plan 2" is
- $19.95/month which includes 8 free hours of core and/or Plus
- services; extra hours beyond the 8 free hours are billed.
- Participants in the Medical Support board where the CFS topic is get
- a price special break: 5 hours free usage per month plus $2.40 per
- each hour thereafter while in the Medical Support/CFS area. Outside
- of the Medical Support area, the standard hourly rates, when
- applicable, are $4.80/hr for 0 to 3 hours, $4.20/hr for over 3 to 6
- hours, and $3.60/hr for over 6 hours billed. There are additional
- fees for sending e-mail. Prodigy plans to add Internet e-mail in the
- autumn of 1993.
-
- COMPUSERVE. To join in North America, call 1-800-848-8199 (see other
- numbers below). They have 2 pricing plans. The Standard plan is
- $8.95/month for basic services, and the hourly rates are: 300 baud,
- $6/hr; 1200 or 2400 baud, $8/hr; 9600 baud, $16/hr. (INTERNET: There
- is no hourly rate while using mail under this plan; instead, Internet
- messages sent or received are billed at $0.15 per 1st 7500
- characters, $.05 for each 2500 characters thereafter, and there is a
- $9/month mail allowance.) The Alternative plan is $2.50/month; the
- hourly rates are: 300 baud, $6.30/hr; 1200 or 2400 baud, $12.80/hr;
- 9600 baud, $22.80/hr. (INTERNET: use of the mail area is simply
- billed at this plan's regular hourly rate.) Prices are higher
- outside of North America. For overseas information call
- 1-614-457-0802 (Ohio, USA) or call toll-free in Australia 008025240,
- New Zealand 0800446113, U.K. 0800289378, or Germany 01303732.
-
- MCI-MAIL. For sign-up information in the USA call 1-800-444-6245.
- The annual fee is $35.00. (INTERNET: All in-coming messages are
- free. There is a charge for out-going messages depending on the size
- of the message: the first 500 characters are 50 cents; the next 500
- are an additional 10 cents; each thousand characters from 1,001 to
- 10,000 are an additonal 10 cents; each thousand characters above
- 10,001 are 5 cents each.) For service outside of North America call
- 1-202-833-8484 in Washington, DC or in the UK call 44-71-9281232 or
- in Germany call 49-89-4313071.
-
- AMERICA ON-LINE sign-up information can be found at telephone
- 1-800-827-6364. The cost is $9.95/month and the connect-time rate is
- $3.50/hour after the 5 free hours given each month.
-
- C. FIDONET
-
- If you don't have a nearby BBS which carries the CFS conference (as
- listed in Section 6 above) but would like to have local access, ask
- Fidonet BBSs near to you to please carry the conference (usually
- referred to as an "echo"). If you don't know of Fidonet BBS nearby
- to you, then consider the following sources:
-
- 1. If you are the contact person for a support group, then contact
- the CFS/ME Computer Networking Project for assistance (see
- description & address at the end of section 1 above).
-
- 2. Get a copy of the Handicap BBS file and find the Fidonet BBS
- nearest to you. Since the BBSs listed in this file already deal with
- health-related issues, they may be particularly amenable to a request
- to carry the CFS echo. In the file, the Fidonet BBSs will be those
- which are accompanied by designations like (123/456). The file can
- be found on the Handicap News BBS at 1-203-337-1607, filename
- HCAPBBS.LST or *.ZIP. Or do anonymous ftp from
- handicap.shel.isc-br.com (129.189.4.184) and get bbslists/hcapbbs.lst
- or *.zip. On the Internet, send the message GET CFS-BBS HANDICAP as
- e-mail to the address LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU .
-
- 3. You may dial up one of the Fidonet coordinators listed below and
- leave a message (to "SYSOP") asking for a list of the Fidonet BBSs
- nearest you (mention your city and state/province).
-
- ZONE 1 NORTH AMERICA
-
- Calif-Nevada, Tustin CA 1-714-838-6539
- Central United States, Columbus OH 1-614-841-0355
- Eastern Canada, Ottawa ON 1-613-723-5711
- Mid-Atlantic, Fairfax VA 1-703-323-7654
- Mid-West, Joplin MO 1-417-673-2283
- AZ-CO-NM-UT-WY, Phoenix AZ 1-602-894-8762
- New England, Danbury CT 1-203-791-8532
- North-West, Vancouver BC 1-604-266-1977
- SouthEast/Caribbean, Titusville FL 1-407-383-1372
- TX-AR-OK-LA, Houston TX 1-713-496-6319
-
- ZONE 2 EUROPE & MIDDLE EAST
-
- Sweden 46-36-121323
- Oslo, Norway 47-2-221064
- Espoo, Finland 358-0-881562
- Denmark 45-32-961764
- Hamm, Germany 49-2381-460077
- Hastings, United Kingdom 44-424-853361
- Ireland 353-402-35308
- Pfaffenthal, Luxembourg 352-42-0201
- Netherlands 31-75-217873
- Schoten, Belgium 32-3-6851123
- Aarau, Switzerland 41-64-230319
- Vienna, Austria 43-1-8154873
- France 33-75676164
- Genova, Italy 39-10-3770080
- Barcelona, Spain 34-3-2193452
- Varna, Bulgaria 359-52-259108
- Lisboa, Portugal 351-1-8520478
- Hungary 36-56-422-189
- Koper, Slovenia 38-66-34986
- Iceland 354-2-14626
- Kfar Saba, Israel 972-52-914-618
- Thessaloniki, Greece 30-31-237763
- Czech Republic & Slovak Republic 42-184-3893
- Turkiye 90-1-2572790
- Tbilisi, Georgia 7-8832-293581
- Minsk, Belarus 7-0172-706000
- Kharkov, Ukraine and Moldova 7-0572-305216
- Lithuania 370-7-798430
- Riga, Latvia 371-2-223986
- Warszawa, Poland 48-22-410374
- Tallinn Estonia 372-2-433023
- Moscow, Russia 7-095-329-2192
-
- ZONE 3 OCEANIA
-
- Melbourne, Vic, Australia 61-3-792-3507
- Inglewood, South Australia 61-8-380-5505
- Sandgate, Qld, Australia 61-7-269-6355
- Perth, Western Australia 61-9-257-1309
- Christchurch, New Zealand 64-3-383-1155
-
- ZONE 4 AMERICA LATINA
-
- Brazil 55-71-244-8764
- Uruguay 598-2-486616
- Chile 56-2-279-6767
- Argentina 54-1-544-6241
- Panama City, Panama 507-23-9669
- Monterrey NL, Mexico 52-83-56-4119
-
- ZONE 5 AFRICA
-
- Gaborone, Botswana 267-373461
- Johannesburg, South Africa 27-171-84102
- Harare, Zimbabwe 263-4-738692
- Nairobi, Kenya 254-2-567043
- Addis Ababa, Ethiopia 251-1-514412
- Lusaka, Zambia 260-1-252892
- Dakar, Senegal 221-21-7627
- Tunis, Tunisia 216-1-70-1827
-
- ZONE 6 ASIA
-
- Singapore 65-2410418
- Kowloon, Hong Kong 852-789-1267
- Tainan, Taiwan 886-6-275-3162
- Sagamihara, Japan 81-427-77-0847
- Quezon City, Philippines 63-2-712-0329
- Anjung-Ri, Korea 82-333-691-1602
-
-
- ==================== From: CFS-L@LIST.NIH.GOV =====================
-